Dr. Jones needs your help! Please donate to his defense fund as soon as possible. He is in peril of losing his defense team if he does  not raise substantial funds immediately! Thank you for your continued support for Dr. Jones AND all "his" kids!

DOCTORS SUE TEXAS MEDICAL BOARD FOR MISCONDUCT - Cites institutional culture of retaliation & intimidation

 

 

 

MEDIA ALERT

PHYSICIANS, LEGISLATORS AND PATIENT ADVOCATES TO DISCUSS LACK OF ACCESS TO CARE FOR CONNECTICUT LYME PATIENTS

HARTFORD, CT—Dec. 18, 2007 – Jason Bartlett, Connecticut State Representative for the 2^nd Assembly District (Bethel, Danbury, Redding), will be hosting a breakfast conference on Tuesday, December 18 to discuss the importance of access to care for Connecticut residents suffering from Lyme disease.  Leading experts on the affects and treatment of chronic Lyme disease will join Mr. Bartlett to lead the discussion, including Dr. Daniel Cameron President of the International Lyme and Associated Diseases Society (ILADS) and Pat Smith, President of the Lyme Disease Association, the largest Lyme patient advocate group in the United States.

Access to adequate care for Lyme disease is one of the most serious issues facing the people of Connecticut.  More than 34,000 Connecticut residents are diagnosed with Lyme disease every year and the number of cases is increasing.  Because there are no accurate diagnostic tests for Lyme disease, many people are at risk of developing chronic Lyme, a high debilitating form of the disease. 

The discussion on Tuesday will focus on the impact of Lyme disease on the people of Connecticut and the need to increase the number of doctors who understand the complexities of the disease and are trained to practice a new standard of care focused on improving patient quality of life. 

This breakfast conference precedes a Lyme prevention forum being held by Connecticut legislators to educate their members.  Later that day will be the final hearing on Dr. Charles Jones, a Connecticut doctor whose treatment of children with Lyme disease has thrust the access to care issue into the spotlight. 

Members of the press are invited to attend the 9 a.m. breakfast conference event in person.

§         RSVP:  Pam Kahl, (503) 706-0259  pam.kahl@verbal800.com 

Event Details 

§         Where:  Connecticut Legislative Office Building, Private Dining Room- First Floor  300 Capitol Avenue  Hartford, CT  06106

§         When:  Tuesday, December 18, 2007  9am – 10am

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If you’re concerned about Lyme disease care…

 Your Participation is Crucial –

Your Access to Care is in Jeopardy!

Tuesday, December 18, 2007

3 events, same day, same building.. 

Join patients, advocates, doctors & legislators.

 Numbers count! 

• Our Lyme doctors are being discredited and brought up on charges;
• Our coverage is being denied; 
• We are losing the ability to be treated with effective protocols. 
• This is our chance to DEMAND access to quality care!

1.      Join Legislators & Media for FREE breakfast

9 am to 10 am

Private Dining Room - 1^st Floor / Connecticut Legislative Office Building in Hartford

Call your state legislators at www.congress.org and make sure they are coming.

Speakers:

Representative Jason Bartlett – 2^nd Assembly District for the State of CT

Daniel Cameron, MD, President

International Lyme & Associated Diseases Society (ILADS)

Patricia Smith, President

Lyme Disease Association, an all volunteer national patient advocacy organization

Sandy Berenbaum, LCSW, BCD

2.      Lyme Disease Prevention Informational Forum

10 am to 12pm

Room 1-D / Connecticut Legislative Office Building in Hartford

Matthew Cartter, Durland Fish & others will speak at this forum.

No Lyme patient advocacy representatives have been invited to the forum, but there will be an Animal Rights activist speaking.   Who will speak for our children?  We consider this a blatant dismissal of the concerns of patients who may have a differing opinion.

3.      MAIN EVENT:  Dr. Jones Hearing - Medical Board Proposed Memorandum of Decision

1:30pm

Conference Room 2c / Connecticut Legislative Office Building in Hartford, CT

The room seats 200.  We need to fill them.

The hearing is scheduled to review the preliminary findings of the panel charged with overseeing this case. It is very important we demonstrate to the Medical Board, through our respectful attendance, the importance of this courageous physician to the care of our children nationwide.  This is the first time the entire board will have the opportunity to see the patients & advocates.  A large turnout is ESSENTIAL!

·    For those interested in attending any of the above events or for more information contact RLDTF@comcast.net and so you can be notified in case of last minute cancellation.

·    For travel, ridesharing & all other info regarding Dr. Jones hearing visit www.lymesite.com/drjones.htm

·    Stay tuned for information on letter writing campaign.

Directions & Parking Info

From I-84 Eastbound
Take Exit 48, Capitol Ave (stay in right lane of exit). Go right at end of exit ramp onto Capitol Ave. and proceed past the Legislative Office Building which will be on your right. Immediately past the building, take first right and proceed past both the building and the parking garage beyond it. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building. 

From I-84 Westbound
Take Exit 48, Asylum St. Go right at the light at the end of the exit, then bear immediately left onto the start of Farmington Ave. Go a very short distance on Farmington Ave. to the next light (YWCA is on the corner), and turn left onto Broad St. Go through one stoplight, and past the State Armory building which will be on your left. Immediately past the State Armory building, turn left into the Legislative Office Building access road, and then take your next left. You will be heading toward the Legislative Office Building parking garage. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building. 

From I-91 North or South
Take Exit 29A, Capitol Area exit, and proceed along the exit 29A connector. You will come to a traffic circle at the end of this long connector road. Proceed around the traffic circle, and turn right from the circle onto Elm St. Follow Elm St. to the end, (you will see the State Capitol Building in front of you). At the stop light at the end of Elm St., go left onto Trinity St., then go right at the next light onto Capitol Ave. The State Capitol Building will be on your right. Proceed along Capitol Ave., going past the Capitol Building, and past the entrance to I-84. You will also go past the Legislative Office Building which will be on your right. Turn right into the entrance immediately after the Legislative Office Building, and proceed past both the building and the parking garage beyond it. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building. 

From West Hartford, Route 44
Take Asylum Ave. (Route 44) from North Main St. in West Hartford. Proceed along Asylum Ave. (Route 44) heading toward Hartford until you get to the Broad St. intersection (The Hartford Insurance Group headquarters building will be on your left). Turn right onto Broad St. and proceed past the State Armory building on your left. Immediately past the State Armory building, turn left into the Legislative Office Building access road, and then take your next left, heading toward the Legislative Office Building parking garage. Continue all the way to the back of the garage to enter for parking. There is a covered walk way from the top level of the garage to the third floor of the Legislative Office Building.

Parking Info:
Parking at the Legislative Office Building (LOB) is limited. Please allow extra time to park.

• Limited free public parking is available on level one of the Legislative Office Building parking garage;
• Across the street from the Legislative Office Building (across Capitol Ave.) is Hungerford Street. There is on-street parking in this entire neighborhood, free of charge;
• On Oak Street (diagonally across to the left from the Legislative Office Building) off of Capitol Ave., there is a public parking garage in the CT Education Association Building (CEA building - across from the Connecticut Supreme Court Library). This garage costs money, but can save you time and aggravation;
• There is also parking available on the street next to the CEA parking garage.

 

Hearing Dates & Directions

Buses to hearings

Donation info

Fundraisers

Synopsis of Hearings & Letter by Sandy Berenbaum, LCSW

Letters from Dr. Jones

Reasons to support Dr. Jones 

Misconceptions